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Richard Stallman's Political Notes

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Cystic fibrosis treatment patent

lundi 13 juillet 2015 à 14:00

The Cystic Fibrosis Foundation developed a drug that treats that disease, then sold the patent rights for 3 billion dollars. The new owner will surely insist on extracting a much larger sum from the patent, which will make the drug so expensive that many people with cystic fibrosis can't afford it.

The option to do this in effect sets research charities against the sick people they raised money to serve. And it probably violates the expectations of those who donated to these charities.